· Desk editor: Nadia Hassan · · Single source

Endometriosis report calls for national workplace framework and employer education

A government-commissioned report on endometriosis in the workplace has prompted calls for a new national framework to support women facing chronic pain.

'Painful condition meant I had to leave my job'
File photo 'Painful condition meant I had to leave my job' Photo: BBC News

Charlotte Samphire left her job

Twenty-one-year-old Charlotte Samphire from East Yorkshire quit her position as a beauty therapist because severe endometriosis symptoms made work impossible. The charity Hey Endo! now supports her alongside other women affected by the condition. A recent government report confirms that this illness significantly impacts careers and finances for many patients across the UK.

MPs want updated equality guidance

Kirsteen Sullivan MP chairs the All-Party Parliamentary Group on Endometriosis and wants a national framework similar to existing menopause action plans. She argues current Equality Act guidance must review how it handles fluctuating chronic conditions like endometriosis which affects 1.5 million people in the UK. The group recently published findings after commissioning a study funded by Endometriosis UK to highlight these workplace issues.

Charity co-founders share personal stories

Helen Wilkinson and Ashleigh Hirst co-founded Hey Endo! which became a registered charity in 2024 with over 3,500 service users now. Wilkinson lost many roles due to sickness absence while trying to manage her health without losing employment. The Hull and District Trades Union collaborated on a Best Practice Charter launched last year to help employers understand invisible illnesses.

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